You may use this Guestbook to show your support for the family and send them greetings by adding an entry below.
Sun, 09/28/2014 - 1:06pm
Hi Chelsea. I worked with your grandfather at Unilever and pretty much
followed your journey since you were born. I've since retired but I saw your
grandfather the other day when I visited the office and he informed of your
pending transplant. I wish you great success with the transplant and I am
including you in my prayers. All the best to you!
Rick Lofgren, COTA President
Thu, 02/20/2014 - 2:53pm
Greetings from COTA! I want to congratulate the COTA for Chelsea W team for
an outstanding job raising funds for the campaign! When I set the campaign
fundraising goals with all of our families, I try to do so knowing that some
communities and volunteer teams have more developed resources and connections
than others, and in fundraising these are critical to success. With this in
mind, I usually suggest a goal to COTA parents that I believe is needed for
any patient’s long-term expenses and transplant-related costs, and the goal
generally reflects the next four to five years of out-of-pocket costs. For
example, most of our patients will have $2,500 - $5,000 in annual
co-payments, deductibles, and medications, as well as $2,500 of annual travel
costs for clinic visits. This could mean $10,000 - $25,000 for these costs
alone for any patient in two or three years after transplant. In this case,
because your team and supporters have done such a great job already, I spoke
with Chris this week, and suggested that we raise the goal to better reflect
what I believe is the true long-term expense that a patient will incur given
age, insurance and other factors for someone such as Chelsea. Because of
this, we have raised the goal for the COTA for Chelsea W team from $65,000 to
$100,000 to reflect what I believe will be actual costs going forward. Please
know there are many factors in this and that I bear the responsibility of
justifying this to anyone who asks, and am prepared to do this as I believe
that it is the right thing to do. I want to convey that this is not a request
for everyone to go out and do more than previously planned, but simply a
reflection of realistic long-term costs and the fact that this team has
additional activities that have already been started and/or planned, and will
likely reach this new goal in 2014. Thank you for all the work and support
you have provided to this point, and please keep Chelsea and her entire
family in your prayers as they continue to traverse the road to transplant!
Coolest Cousin Ever!
Tue, 02/04/2014 - 9:26pm
HAPPY BIRTHDAY! I love you tons and hope today was just perfect :) miss your
hugs and hope to see you soon -Disco Dan
Thu, 01/02/2014 - 1:57pm
Hi Chellie, thank you so much for all of your help in getting our New Year's
Eve dinner ready. I could not have done it without you. You are going to make
quit the chef someday. Love you and thank you again, we had so much fun!!!
Tue, 12/24/2013 - 10:55pm
Chelsea, We had a wonderful Christmas Eve with you and your family and Uncle
Eddie and his family. It is always such a treat to see the look of happiness
and surprise on your face when you all open your gifts. Grandpa and I had a
wonderful time and can't wait to see you all on New Year's Eve. Go to bed
early because you know who is delivering toys tonight. Love you xoxoxox.
Tue, 12/24/2013 - 12:47pm
We love you Chelsea - you have been an inspiration for grandma and myself.
Our prayers go out to you.
Sat, 12/21/2013 - 8:00pm
Chelsea God who brought you into this world has purpose for and we are
praying for you and all will be well. Nice blog.
Sat, 12/21/2013 - 7:57pm
Chellie, saw you on CNN and you were awesome. I am so proud of you and I love
you so much.xoxoxox, grandma D.
Sun, 12/15/2013 - 11:26pm
Chelsea and Family, Stay strong - we are thinking of you!
Wed, 12/11/2013 - 12:36am
Chelsea!!!!!!!!!! Miss you tons :( but I have LOVED reading your blog posts
:) hey, I invited my friends to join your Facebook page, I hope that's
alright. So if you start seeing faces you don't know, that could be them!
Love you!!! -Dan